Monday, March 10, 2008

Enough already

Well, around Thursday I started getting really tired - much more tired than I had been. On Thursday night, I tried to go into the store to buy one thing and discovered I was so tired I could barely make it out of the store again. Like my limbs just wouldn't go. I also had joint, muscle, and nerve pain. Joint and nerve pain is pretty standard for me, but this was way worse. I only get all over muscle pain if I try to do something, like clean something, give the cat a bath, etc. Since I just *had* given the cat a bath on Wednesday, I figured it must be that, even though it was much worse than usual. The pain didn't go away, though. The surprising thing is how high my pain level is given all the painkillers I'm taking (for me). I've also been sleeping 10-12 hours a night and still feel so tired all the time that I can barely lift my arms, or anything else. I don't feel like eating at all.

Anyone else see where this is going? Well, I didn't until today. I heard my husband coughing because he stayed home from work sick (which he NEVER does), and something "clicked." Duh, I have the flu. How does one have the flu for five days without noticing? Well, I normally have chronic pain, I've had chronic fatigue (not CFIDS) in the past, I normally have all these transient things, I'm on a lot of painkiller for the whole teeth thing, and my body doesn't really do fevers because I have an autonomic nervous system disorder. I'm not coughing, but I've had the flu once before, and I didn't cough then, either.

At least if this is day 5 for me, it should be over soon. My husband is definitely getting the short end of the stick here, since he's never sick and isn't used to this sort of thing the way I am. It's too late for him to get Tamiflu, unfortunately.


Christine-Megan said...

Hope you're feeling better soon!

Lili said...


Keezheekoni said...

Ugh, I hate the flu! I am the only one in the house who didn't get it this year, I don't know if getting the flu vax helped or that I made everyone clean up their own messes! :D

I hope you're feeling better soon!

I wish I would have known you went to the CWD conference. I was going to go, but didn't think anyone but parents of T1 kids were going...none of my kids have it *knock on wood*, but it would have been interesting to see what the reps had to say!

Scott K. Johnson said...

Major suckage Lili! Hope you're feeling better soon!

Tara said...

Subject: Invitation to check out the Online Community we are Creating for Diabetes on Trusera.

Dear Lili,
Hope you are feeling better from the flu and wish you well. First off, thank you for blogging, and shedding light on T1 Diabetes. Your posts are exactly the kind of material that would help support our online Diabetes Community at Trusera ( - located here in Seattle), and I invite you to share some posts with us. It might be the new project you are looking for and I believe you will feel “infused with new life” from helping the many people in need of this kind of first hand health information.

Secondly, I’d love the opportunity to speak with you about Trusera (, a free invitation-only network that connects individuals to first hand health experiences of others. We are a new venture created as a resource for health communities and a safe environment where people can share and pass on health information they have learned or are learning from experience, for others to benefit from. We believe that there is great value in learning from others who have walked a mile in your shoes, and our goal is to build a strong base of people and experiences with whom others can connect for information, support and insight. We are working to create a place where people with Diabetes can network, discuss resources, and to create a toolkit of stories based on experiences that empower people to take control of their health and learn how to achieve stability. We believe this resource will be valuable for those who have been recently diagnosed, friend and family, and to raise Diabetes awareness to those on different health communities on our site.

The Diabetes Community’s real need and demonstrated track record for sharing knowledge and support has made it one of Trusera’s first areas of focus. We want to create a safe environment where people can share suggestions for diet, maintaining stability, diabetes technology, etc. for those who have been recently diagnosed with diabetes or those at any stage, looking for more information. I’ve been reading your blog and wanted to reach out to you because you seem to share our belief in the power of sharing experiences. I am reaching out to a select group of people within the Diabetes Community – leaders and advocates- as part of an effort to build valuable, credible content on Trusera and connect existing networks of people in new, powerful ways online. I would love it if you would share your experiences with our community and would like to discuss the different ways in which you could play a meaningful role in sparking this new resource for the Diabetes Community. We are running several programs that I’d love to talk to you about. Please let me know if I can send you an invitation via email to our site.

Warm Regards,

Tara Holahan
206.709.3060 - check us out! We’d love to hear your thoughts
2011 East Olive
Seattle, WA 98122